Long COVID is a problem for millions of individuals. Why is there no remedy yet?

According to Shelley Hayden of Sonoma, who has a severe form of Long COVID problem. In order to avoid losing her place in the conversation. The 54-year-old marketing coach politely told that he will not interrupt.

After Tyler Gustafson of Berkeley recovered from COVID-19 in 2020. last summer he has a heart attack-like pain in his chest. His body prickled, heart rate increased and thinking slowed as his left side started to become numb. Even his vision started to blur. Worst of all, the management consultant had to go on medical leave since the symptoms didn’t stop. Thirty years old was him.

Strangely, Gustafson is starting to get better. But Hayden continues to struggle with recurrent “crashes” that drain her energy for days or even weeks at a time.

Two of the millions of COVID survivors still suffering symptoms, their horrifying, contradicting medical sagas reveal the syndrome’s ongoing mystery. Which has perplexed medical experts and left pharmaceutical businesses unable to determine where to concentrate their therapeutic efforts.

Patients claim that they feel trapped in quicksand.

The patients feel very terrible situations, according to Hayden. “I’ve been instructing my physicians!”

President Biden’s Action Plan Against Long COVID is a problem in the USA

President Biden unveiled a National Research Action Plan on Long COVID is a problem in the USA on April 5. By realizing the need to tackle the issue more quickly.

Recover, a $1.15 billion National Institutes of Health effort to coordinate lengthy COVID research at locations around the nation. UCSF and Stanford will build on this public-private partnership.

Researchers from all over the world have scanned, prodded, and peered at thousands of people in the two years. Since patients and medical professionals first discovered long COVID. In an effort to find anything that might help treat the lingering symptoms. Which include exhaustion, brain fog, racing heartbeats, and loss of smell.

They estimate that around a third of COVID survivors have not immunized and nearly half of those had persistent symptoms.

Dr. Steven Deeks’s investigation of the Long COVID problem in the USA

According to Dr. Steven Deeks, co-principal investigator for the UCSF project LIINC, or Long-term Impact of Infection with Novel Coronavirus. Researchers are progressively learning more about the illness. 18 publications are published by LIINC alone. Including a brief new one that suggests the COVID medication Paxlovid helps reduce lingering effects.

The three most probable reasons for protracted COVID, according to researchers, are autoimmunity. Or when the body’s immune system attacks itself, buried viral fragments, and persistent coronavirus-induced inflammation.

At a hearing in March, Deeks said state legislators that they, in turn, cause trouble in four key ways. They result in neurological symptoms. Such as disorientation, crippling exhaustion, heart issues, and a rare disorder known as POTS, or postural orthostatic tachycardia syndrome. Where the patient’s heart races when they stand up.

Like Hayden and Gustafson, several people have overlapping symptoms. Sen. Tim Kaine of Virginia claims that despite having a lengthy COVID. His nerves tingle “24-7,” as if his fingers are in a glass of Alka-Seltzer.

However, even identifying lengthy COVID is challenging. Deeks informed the MPs that neither X-rays nor blood testing could reveal the condition. Without it, the treatment is still tricky.

I knock on the doors of all the pharmaceutical firms, telling them that they needed to become engaged. They claim that we are committed. However, how are we going to essentially show the FDA that our medication is effective?

Also Read: Covid 19 Self Test at Home

Clinical studies to investigate whether current medications are repurposing for extended COVID “are anticipating to begin shortly,”. According to Dr. Larry Tsai, who is in charge of Genentech’s respiratory and allergy product development. But novel drugs? No, he replied. These experiments “await improved scientific knowledge of the underlying reason”. And a more precise understanding of who might react to them most effectively.

Gustafson used to run a few miles every day, hike, surf, and play the guitar until he had moderate COVID. Many long-haul drivers have this tale to share: They were very healthy up until they weren’t. They then felt much older than their actual age.

I honestly felt like I was having a heart attack every second of the day. He claimed of his chest agony. Which lasted for seven months without ceasing. “I thought my heart would burst out of my chest.” Yet his tests came back clean.

With one exception, his cytokine levels, which show significant inflammation.

Steroids and other anti-inflammatories were recommended by Gustafson’s Stanford medical professionals. He didn’t feel any better until March when they tried colchicine. Which is often used to treat gout, and low-dose Naltrexone, a medication used to inhibit the effects of opioids.

He is back at work now with a “65% improvement,” but he acknowledged that certain days are still difficult. “I feel like everyone is just waiting,” the speaker said.

WHO verdict about Long COVID as a reported problem in the USA

It took more than a year for everyone to agree on a definition of extended COVID. But the World Health Organization eventually provided one in October.

The symptoms of the syndrome, persist for at least two months and “cannot be explained by another diagnosis,”. Appear “typically three months following the beginning of COVID-19.” The organization came to the conclusion that long-term COVID impacts daily functioning. May last from the moment of COVID infection forward, and varies over time.

One of those patients was Lisa McCorkell of Oakland, who after becoming addicted to COVID co-founded the Patient-Led Research Collaborative. It’s only one of several lobbying organisations that have regular meetings with the American Centers for Disease Control and Prevention.

She said that if the HIV/AIDS movement hadn’t made headway in collaborating with government agencies. I don’t believe we’d be nearly as far with long COVID. They understood that the power should be held by those who were closest to the suffering.

Long COVID is a problem in the USA what are the symptoms by McCorkell

In March 2020, McCorkell was almost through with her master’s degree in public policy. When she began to experience the typical COVID symptoms. Which are shortness of breath, body pains, and even the swollen extremities known as COVID toes.
She afterward had POTS, the racing heart when standing, and other symptoms. That seem more tolerable now that she’s had the vaccine. She was never diagnosed. However, as was the case with the majority of those who contracted the disease in the early stages.

“That’s coming back to bite us now,”. She added, noting that both workers’ compensation and research programs need participants to have a COVID diagnosis. One of the things we’re working against is making those things dependent on taking some type of exam.

Long-term COVID therapy trials are supported by the federal government. Have looked at the potential benefits of singing, magnetic resonance imaging, and even cannabis. Most are little thus far.

“It’s a really exciting area of research. However, we need to conduct well-designed and rigorous studies,” said Dr. Lisa Geng, co-director of Stanford’s long COVID clinic.

What are their thoughts on Geng about Long Term COVID problem – the USA

Which gets back to why patients feel so frustrated. “We’re still very much in the process of trying to understand the causes of long COVID,” Geng said.

Like many sufferers, Hayden is impatient for results. “People need help this minute — not six months from now or two years from now. It’s heartbreaking and unfair.”

Researchers with UCSF’s LIINC study have collected a lot of data from Hayden, but it isn’t a treatment.

“Her case is pretty severe,” said Dr. Michael Peluso, clinical lead and co-principal investigator of LIINC. Where many participants, like Hayden, have “post-exertional malaise.”

It basically knocks her flat. She and others compare their experience to the equally mysterious myalgic encephalomyelitis or chronic fatigue syndrome.

When she “crashes” every few weeks, she says, “I feel like I’m crawling. It’s hard to stand up. Hard to walk across the room. And you don’t feel rested after sleep” because her joints hurt during the night, she said. And there’s brain fog. She’ll start a word — say, “couch” — and it cuts off as “couch.”

Absent any treatment from doctors, Hayden and other long COVID sufferers turn to each other for remedies.

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